How You Can Help
How Your Support Makes a Difference
Navigating an ultra-rare diagnosis is a journey we cannot take alone. Your contribution provides the tangible tools Addy needs to navigate a world that wasn't built for GNAO1.
Specifically, your donations are dedicated to:
Bridging the Therapy Gap: Covering specialized intensive therapy sessions that go beyond what insurance allows, ensuring Addy never loses momentum.
Essential Adaptive Gear: Funding the high-tech mobility aids and equipment necessary for Addy to sit, move, and interact safely.
Investing in a Cure: Supporting critical GNAO1 research to unlock new treatments for Addy and the small global community of children like her.
Every dollar is a step toward a more accessible future. Thank you for being part of the "All for Addy" village.
Venmo: mvande
Zelle: mvande4@gmail.com
Additional Ways to Support
The Bow Foundation is the leading organization for GNAO1 research and family support, making it the most impactful place to donate to advance treatments, awareness, and hope for affected children.
The Olivia Joan Foundation was founded by a member of the GNAO1 community who has become a close friend and an invaluable source of support for our family. Through research funding, scholarships, and awareness efforts, the foundation continues to uplift families navigating this rare diagnosis.
What is GNAO1?
GNAO1 is an ultra-rare genetic neurological disorder caused by a mutation in the GNAO1 gene, which plays an important role in how the brain sends signals throughout the body. This condition primarily affects the nervous system and can impact movement, muscle tone, development, and communication. Children with GNAO1 may experience symptoms such as involuntary movements, low muscle tone, developmental delays, and seizures, though the presentation and severity can vary widely from person to person. Because GNAO1 is so rare, with fewer than 350 known cases worldwide, there is still much to learn about how the disorder progresses and how best to treat it. Ongoing research and awareness are essential to improving understanding, care, and outcomes for individuals and families living with GNAO1.
